By Amber Sapp
Garrett Sapp is the 11-year old son of Randy and Amber Sapp, residents of Columbia. He loves movies, Legos, anything Star Wars and playing with his 9-year old sister Charlotte. Garrett also has Duchenne muscular dystrophy.
Duchenne is a progressive muscle-wasting disease very similar to ALS, but in children. It results in progressive loss of strength which leads to serious medical problems, particularly issues relating to the heart and lungs. Young men with Duchenne become fully wheelchair dependent by age 12 and typically live into their late twenties. There is no treatment for most forms of Duchenne (Garrett’s form included) and no cure.
When we were initially faced with Garrett’s Duchenne diagnosis we knew that we couldn’t just sit back and do nothing, so we partnered with Parent Project Muscular Dystrophy (PPMD) to create Garrett’s Hero Run to raise money for a cure. PPMD is the largest non-profit organization in the US focused entirely on Duchenne muscular dystrophy.
On October 14, 2017, the 7th Annual Garrett’s Hero Run will be taking place at Maury County Park. Participants dress in superhero costumes and run or walk in the beautiful park setting while raising awareness and funds for a cure for Duchenne MD. For more information, to register or become a sponsor please visit our website at www.parentprojectmd.org/garrettsherorun